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CC123
Aquamarine Member (10+ Posts)
Joined: 02 Jul 2008
Posts: 18
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Ok...I have told my story. My pain (pressure) is back in my pelvic floor moving from bladder, vagina, to rectum mostly when I sit and lay down. I have been on the pill for 6 weeks. This week should be the week I ovulate (shouldn't cuz of the pill) but after urinating and wiping I had some brown tinged mucus. What is that about? I have been doing that the last couple of months mid cycle. Should I be worried. Not that I am not worried already but what is going on???
I am hanging on by a thread and of course can't get in to see my obgyn till the 27th.
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Thu Aug 07, 2008 8:35 pm |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hello CC123,
I went back to read your other post and you said that when you went to the emergency the last time and they did an ultrasound, they found fluid in your abdomen.
I strongly suspect that that pain that you are feeling in the bladder and rectal area with the need to push is due to fluid in your abdomen. I get this from time to time around ovulation and I think it is related to ovarian cysts either rupturing or leaking fluid into the abdomen.
That brown tinge is old blood and even though you see it when you wipe after urinating, I strongly believe that it is coming from your uterus and not your urinary tract. Spotting during ovulation is not at all uncommon and you may actually be ovulating.
As for the pill, it is a known fact that the latest generation of the pill is frequently not strong enough to keep women from ovulating because it has a very low estrogen component. You may therefore still be ovulating despite being on the pill. Oral contraceptives are still efficacious though because they keep your uterine lining thin so than you cannot get pregnant.
Have you also considered that the spotting may be caused by the pill itself ? This is an extremely common occurence with oral contraceptives, especially if you have just started them. This is particularly true with the newer generation of pills. If the pill is not helping your symptoms and the only reason you are on it is for this, you may wish to discontinue using it (with your doctor's approval). This may take care of the spotting problem (did you have this problem before going on the pill?). Another option is to try a low dose pill as opposed to an ultra low dose pill but I am not sure if this will work either and you definitely don't want anything with more estrogen than this as it may cause harm in the long term.
You may wish to contact your gynecologist and mention these symptoms to see if he or she will want to see you sooner. Sometimes I find that if it is impossible to speak with them directly, dropping them a written note (brief and to the point) at the office is helpful and they will call you at their convenience when they have read the note (usually after office hours).
I know that things seem hopeless at the moment but your spotting may very well be unrelated to your cyst pain. When I was experiencing irregular bleeding last September and I knew I had an ovarian cyst, I was blaming my uterine pain and the spotting and bleeding on the cyst and thought I had some sort of serious disease that my doctors were missing. As it turned out, the birth control pill had atrophied my endometrium after 20 years of use and the progesterone in the pill was causing the irregular bleeding and the uterine pain. Once I stopped the pill, the bleeding and the pain went away (except during ovulation). It is natural to assume that all of our symptoms are related but sometimes they are not so keep this in mind.
Hang in there and come back if you need to vent or if you need support or whatever. We are all here to help. |
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Fri Aug 08, 2008 7:14 am |
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CC123
Aquamarine Member (10+ Posts)
Joined: 02 Jul 2008
Posts: 18
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Thank you estria. I went to see a new general practitioner today. I was going to go to the ER last night but hung in there til today. I explained my symptoms and told him that I am at my wits end. This has ruined my kids summer as I have not been very much fun and is affecting my relationship with my husband because I have been in pain off and on for 2 months with no concrete answer as to why or how I can fix it. He ordered some blood work (white blood cell count, inflammation, and cancer tests). He also called over to the hospital and is trying to get me an ultrasound in the next couple of days instead of me waiting until the 20th. I told him I have a sigmoid scheduled for Monday to rule out anything in my colon. He also prescribed me some pain pills since the motrin does nothing for the uncomfortable pressure feeling in my butt. What a nightmare.
Interesting about the pill. The first month seemed to help. This new pack however is not. My breasts aren't as sore as they were last month from the pill either. I wonder if I got a bad pack (all sugar pills) because like I said this is the week that I should be ovulating and I had the brown tinged discharge (hardly anything). I notice that brown discharge just after ovulation in May too. I wasn't on the pill then and that is when all of this started I think. I was having a low stomach crampy feeling in May. Then boom...got hit like a bullseye right in the bum and bladder in June.
Thanks for being there. Everyone else I talk to about this looks at me like I have a third eye or something. Oh and by the way...I got to sing with a live band the other day in there studio and they asked me to be a guest at there next gig which was last night and I had to pass because of my problem so they said they would like to have me next month. I can't wait. Hopefully I will be better by then.
One more thing...do you remember aching in your vagina and bum with your cyst or was it more in your pelvis where your ovaries would be? Sorry so personal but that is more where I ache. I told the doctor today that I feel like I need to lay an egg or something out of one of my exits, not sure which one. He gave me a chuckle. It wasn't a joke.
Take care. |
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Fri Aug 08, 2008 6:19 pm |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hello CC123,
When I have the severe pain it is usually under my belly button and it is very intense .. like a spasm. Then after a while the pain travels down to my anal and bladder area and it feels like I need to push (not in the vaginal area but really in the tailbone/anus part. I also get quite bloated so that does not help. Today was ovulation day and it was a bad one. I also had a bad pain episode this past Monday after my ultrasound so I have no idea what THAT was .. perhaps I ovulated twice (!). I have not had them this bad lately. I guess occasionally I will have a bad ovulation. I KNOW it is due to ovulation because I also got the fertile mucus which is a thick discharge that looks like egg whites. Spotting (as in your case) is also a sign of ovulation. Your laying an egg analogy is very accurate. I used to say that I would run to the toilet and push hoping that my insides would come out so that I can get some relief. Does that just about cover it ?
I find that a heating pad on full blast really helps to ease the acute pain and bring it down to a duller form of pain. Also, some light walking when the worst is over does wonders to alleviate the bloating. I usually take Advil if I have to and I find that this really works for me, especially if I have to perform on stage and I want to be sure that I don't have a pain episode. When I first got my diagnosis of this cyst I was terrified that it would burst right in the middle of one of my concerts. Can you imagine ?! How horrifying. Anyway, I got over that and if I am going through a pain episode (ie. ovulation time) I take the Advil and it seems to work.
I am very glad that you finally found a doctor who is willing to take care of your needs. The ultrasound may show fluid and cysts but if the fluid has been absorbed by your abdomen already, no fluid will show. No fluid showed on my ultrasound (just the large cyst). Oh and by the way, I had a sigmoidoscopy a while back and it is not so bad. Just uncomfortable when the surgeon puts air into the colon so that he or she can see. My surgeon put in quite a bit and he went a bit higher than the sigmoid as well (just to be sure) so when he put the air in it was QUITE uncomfortable. This is what happens when air is put in the colon (like gas) but don't worry as this is very brief and as soon as he releases the air you get to fart on your surgeon (call it revenge). It's not very dignified but those guys are so used to this it's nothing. Don't know what your prep is but mine was two enemas on the morning of the sig. I felt just fine before, during and after (drove myself home and everything). I think that it is a good idea to rule anything in this area out and this is such a quick and easy test that it is worth it (ie. compared to say a colonoscopy).
You are definitely not alone so hang in there and I hope that the meds the doctor gives you can control the pain. All the best.
Estria |
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Fri Aug 08, 2008 9:59 pm |
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CC123
Aquamarine Member (10+ Posts)
Joined: 02 Jul 2008
Posts: 18
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Estria,
Thank you. Yes, that just about covers it. I really appreciate your insight and information. Fasting today for the sigmoid. Fun fun. Still haven't heard anything to get an ultrasound moved up.
Take care. |
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Sun Aug 10, 2008 4:39 pm |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hi CC123,
As terrible of me as it may sound, I am actually relieved that other people have similiar types of pain. I am certain that this is due to the cyst and I am quite certain that it is due to the liquid from the cyst irritating the abdominal region.
Good luck with the sig. I am sure all will be fine. Some doctors prefer to do the entire colon cleanse before a sig (as in the colonoscopy) but most only require that you fast from midnight and then do a couple of enemas in the morning before coming in. This last easier method was quite effective and my doctor was able to see extremely well (as was I since they let me watch !).
Come back and let us know how everything turns out. I am sure that all of the ladies on these boards are only too happy to offer support to a fellow "cyster"  |
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Mon Aug 11, 2008 7:18 am |
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CC123
Aquamarine Member (10+ Posts)
Joined: 02 Jul 2008
Posts: 18
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No...it doesn't sound terrible. I feel the same way. This board is one of the only things that has kept me same this summer. I will let you know how everything turns out. |
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Mon Aug 11, 2008 10:32 am |
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CC123
Aquamarine Member (10+ Posts)
Joined: 02 Jul 2008
Posts: 18
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So I went for my sigmoidoscopy on Monday and they found nothing. I went to my ultrasound on Tuesday and there are no cysts there now. I am confused as to why I am having all of this pain in my pelvic floor (rectum mainly) if it isn't a cyst anymore. I am so frustrated and sick of feeling like I have an egg up my bum that I could just cry...oh I have done that already.
Frustrated and emotionally drained,
cc |
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Thu Aug 14, 2008 4:54 pm |
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Tracey72
Amethyst Member (20+ Posts)
Joined: 01 Aug 2008
Posts: 20
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 Thats awful
I am dreading it I have a scan on weds next week and I am dreading that my cyst has gone away and I will be in the same boat as I am drained and well the same as you basically
Oh I really feel for you |
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Fri Aug 15, 2008 5:36 am |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hello CC123 and Tracey,
Sorry ladies but aside from being extremely sympathetic about the pain, I am extremely jealous. As of August 4th my big cyst was STILL there after an entire year and it may even be growing slightly (!). Since I had a severe pain on my way home from my ultrasound and I don't believe it was due to ovulation (I ovulated the following Friday on schedule), I am hoping that my cyst has burst (but I doubt it).
CC123, I am wondering if the pain that you are feeling is due to ovulation. Perhaps you are growing large cysts which are rupturing at ovulation and releasing fluid into your abdomen. I know that my first ovulation after 20 years on the pill was excruciating and definitely included this rectal pain that you are describing. My second ovulation was similar but not as bad. It took a while for me to recover and they say that after a ruptured cyst it takes about a week for the body to fully absorb all of the liquid. Did they find any liquid in your abdomen ?
The pill you are taking may not be strong enough to keep you from ovulating (as most of these newer pills are) and you may still be doing it especially in light of the bit of old blood that you are seeing mid cycle. Has your doctor done a thorough pelvic examination to make sure that all is OK ? Also, I assume that your pap smear is up to date. You may also want to get an endometrial biopsy to ensure that the uterus is fine. It is done in the doctor's office and you don't need anaesthesia (take a couple of Advil about an hour before though and you will be great).
Contact your doctor and explain that you are still feeling this pain even though there are no cysts visible on the ultrasound.
I hope you find the reason for this problem soon and all my best for a painfree future. |
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Sat Aug 16, 2008 11:58 am |
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Tracey72
Amethyst Member (20+ Posts)
Joined: 01 Aug 2008
Posts: 20
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So nervous I have my scan in 2 days and I have a twitching eye and tense neck with stress thinking about it.
Just had an awful period which wasnt too heavy but I was in pain and still am a bit. Going out in my car was agony I could feel every bump.
Went shopping on Saturday and then spent all Sunday sat on my sofa all day as I was so tired and even slept
Tonight I feel sick.
At least after wednesday I will know what is what |
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Mon Aug 18, 2008 5:26 pm |
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CC123
Aquamarine Member (10+ Posts)
Joined: 02 Jul 2008
Posts: 18
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Estria,
No, they didn't mention any fluid in my abdomen. I have an appointment with my ob in the morning. I have a feeling he is just going to say I need to up my dose of birth control pills and not tell me what the heck is going on with my body.
Tracey,
I hope your scan goes better than mine and they are able to give you some definate answers. Usually they say no news is good news but in my case I want to know what is causing me so much discomfort. It has gotten to the point where I can barely sit down anymore for too long. What are your pain symptoms? Also I get that eye twitch when I am anxious about something too. Lately, I have had twitches all over my body especially in my legs and ribcage. They last about 15 seconds then go away. I think they started after I started taking the birth control pills a couple of months ago. Wonder if it is related.
Thanks for the positive words and support ladies.
Take care. |
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Mon Aug 18, 2008 10:58 pm |
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Tracey72
Amethyst Member (20+ Posts)
Joined: 01 Aug 2008
Posts: 20
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Hi
CC123 my fingers are crossed you get some answers tomorrow and you are not sent away still not kowing what is going on.
My pains vary I usually get a pulling feeling where my ovaries are and a caraping feeling right across my pelvis. I have lower back ache all the time and of course sometimes the pressure.
When I was out in the car the other day everytime we went over a bump I felt it.
I think the eye twitching is stress related although this morning I have also woke up with a sore neck 
I also get a twitching feeling in my right leg I put it to the cyst lying on a nerve liek a baby would and the other day IO had it on my left side next to my bowel horrible. I am not on any birth control pills
Estria how are you feeling now?
Tracey x
Will be thinking of you tomorrow |
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Tue Aug 19, 2008 3:53 am |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hello ladies,
I am so sorry to hear that you are so uncomfortable. I am not sure that birth control pills are the answer. Last August I began to bleed irregularly after 20 years on the pill. I also started to have pains around the ovary region and I could feel the pulling and pain on sitting etc.. As it turns out, THE PILL ITSELF was causing the problems because my endometrial lining was so thin due to the pill, that it began to develop veins (like varicose veins or hemmorhoids) that bled. The progesterone in the pill can actually thin the endometrium out too much to the point that it becomes fragile like this and begins to bleed. After I stopped the pill, my cycles returned to normal and the pain went away (however the cyst remained). Now I only seem to experience pain around ovulation time and not necessarily on every ovulation. This last one was quite painful but the 5 previous ones were only moderately so. Most of the time I am not uncomfortable, except for thinking about this stupid thing inside me. However, all of my doctors have said that there has been no significant change in about a year so for sure it is harmless. I sure hope they are right. Anyway, I would prefer to avoid surgery if possible. If I had symptoms it would be a different story obviously.
I really hope that you guys get to the bottom of this soon. It certainly serves to ruin your day to day living that's for sure. Just remember that you are not alone and that MANY MANY others are going through the same things that you are.
Come back and let us know about the results of your tests and appointments.
All the best.
Estria |
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Tue Aug 19, 2008 7:17 am |
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Tracey72
Amethyst Member (20+ Posts)
Joined: 01 Aug 2008
Posts: 20
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I left the hospital after waiting two hours feeling what a waste of time.
I didnt have ascan I saw a consultant who asked me the usual questions do I drink smoke etc. Then he said you didnt have scan last time and I said yes I did and he said no you had an xray and I said no I had an US too with a probe where they found a 12 x 6 cyst and he said no you cant have I have no notes. I insisted I did so he sent his helper to go and chase them up came back with scan results which he told me I was right and my cyst was 12 x6 x7 but I had no bloods taken so I said there was some taken but again not in notes. So he said we need to take bloods to see if benign or maligmant so we can decide which hospital to operate in so we shall send an appointment through. So I said well how long to I have to wait for an appointment and he said up to 4 weeks. So I sid well will it be done qucker if I go private and he said there is no need to go private let me see if I can see Mr Duthie( the man who discharged me from hospital) anyway after another 20 min wait he came back with a pathology bag so I had to go to pathology to get my bloods done for cancer.
I now have to wait for a letter in up to 4 weeks to see when and what they are doing
I was expecting another scan and a hospital date. I am so upset and I have to wait being so uncomfortable and in constant pain
I dont know what to do about work I am signed off until the 8th sept but is it worth going back when I may be signed off again and like you I have good days but mainly I feel lousy and tired
I have a really bad head probably cos I feel stressed. I am going to ring my Gp tomorrow see what he says |
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Wed Aug 20, 2008 9:25 am |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hello Tracey,
So sorry to hear about all of this. Hang in there. I think it is a great idea to get your GP involved as he may be able to push for an earlier date. With a cyst that large they will have to do surgery either way so an earlier date would be better so that you don't have any more pain. My sister in law had a cyst that large and although she was very worried it was completely benign. Ovarian cancer is so extremely rare and more commonly involves women over 60 years of age. You can never be too careful though so it is good that you are having it removed.
If you need moral support of to vent or whatever, please feel free to come back.
We are all here to support each other.
Take care.
Estria |
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Wed Aug 20, 2008 3:26 pm |
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Tracey72
Amethyst Member (20+ Posts)
Joined: 01 Aug 2008
Posts: 20
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Thanks again Estria especially for the bit about cancer I am not actually worried about cancer as I dont think I have it and know the test is just precaution
I left my Gps crying and in despair I dont know what to do
He said the blood test was something they were doing to all men and women as part of cancer research even though I told him the doctor told me it was for the cyst.
He told me they said about different hospitals because there is a new thing out where patients can now choose where they stay even though I said to him the other doctor told me it would depend on the blood results.
This is the best part...................................
He showed me the letter the consultant sent him which basically said I was admitted on the 8th July with bad pains and that I MAY HAVE HAD AN OVARIAN CYST but I was sent home comfortable.
Even though the consultant told me on my discharge day I had a mass 10 cm x 6 cm and that they would have me back in 4 weeks to check again and operation may be done and was my family complete.
My Gp said that cysts usually that are small vanish so I reminded him again that mine is hardly small at 10cm x6cmx7cm which he replied well you should get a letter off the hospital soon and that there was no need for me to go private.
So one minute they are telling me there is a cyst the next that its probably gone.
My dad has gone mad and said they should have given me the scan to find out what the situation was which I agree with. He has offered to pay for one too.
My hubby wants me to go back to Gp and demand a referral to private and hes ringing the health insurance tomorrow
Now I dont know what to do do I stay off sick and wait for the letter cos if I stay off sick and I go back in 6 weeks say and they do a scan and there is nothing there then I look stupid but if I go back to work I feel crap still and wont want to be at work anyway.
I feel like that I am imagining the pain and the cyst probably has gone but the pains are all in my head because I feel so confused and I dont know whats what and no one is giving me a straight answer
Anyway enough ear battering from me I hope you feel better soon. I got some more painlillers today so got plenty to get me though the next month or so
Thanks again Tracey x |
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Thu Aug 21, 2008 4:12 pm |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Tracey,
These people are quite obviously not taking this issue seriously and if you are able to go private, do it ! Start by getting an ultrasound and this time, be sure to get a copy of the radiologist's report which states that you have an ovarian cyst that measures such and such. 10 cm x 6 cm x 7 cm is not a small cyst and if your GP thinks so, find another GP pronto ! Your entire ovary is about the size of a walnut so this cyst is larger than your entire ovary.
If you are feeling uncomfortable, this is a FACT and not in your head. Not only that. These idiots have magnified your pain even further by worrying you to death. Don't let them take advantage of you like that. Take charge of the situation and go and get that ultrasound privately if necessary. Ultrasounds are not very expensive and I usually have mine done privately because I don't want to put up with the B.S. of our public health system which would make me wait much longer.
As for the blood test. The test they are doing has nothing to do with cancer testing for men and women or whatever that GP tried to tell you. The test is the CA-125 test that checks for a cancer antigen that is found in women who have ovarian cancer. Keep in mind that this test is not completely accurate. Not only does it miss about 50% of early ovarian cancer cases (false negative) but it can sometimes show high due to completely benign occurences such as menstruation or endometriosis (false positive).
The reason they told you that where you have the surgery depends upon the test is because if the CA-125 is high they will most likely send you to have surgery at a hospital which has an oncologist. This does not mean that you have cancer but if the CA-125 is high they will want to take extra precautions when removing the cyst, just in case. My sister in law had a high CA-125 when they found her 12 cm complex ovarian cyst and she was operated on by an oncologist. Her cyst was found to be benign anyway but the extra precaution is always necessary. This is also why they asked if you were done with your family because if it became necessary, they would have to remove both of your ovaries, fallopian tubes, your uterus, the omentum (the apron of fat in your tummy) and your cervix. Whenever a surgeon is about to remove a large or complex ovarian cyst he will ask you about this because he wants to be sure that if he has to take action, he has your permission. That being said YOU MUST BE SURE to speak to your surgeon before the surgery and explain what you want. Many doctors take out unnecessary organs even if no cancer is present. This is still a common practice for some stupid reason so be sure to find someone you can trust to respect your wishes.
If you wish to go private then march into that GP's office and DEMAND a private referral. Tell him that you will bug him every single day of the week until he gives it to you. I assure you he will give you the referral rather than take the hassle.
ABOVE ALL, take care of yourself at this time because you will drive yourself insane with this. Doctors can be very unsympathetic to someone who is worried and shows their feelings and they often tend to respond better to someone who is calm, cool and collected. This completely infuriates me but it is a fact so keep this is mind when you are discussing things with medical professionals (to use the term loosely).
Start with the ultrasound and get a copy of that report. A surgeon only needs a copy of this report and the CA-125 result in order to make a decision and if you have this information in your hands you will be well equipped to get that private referral. Usually the radiology report will also say something like .. specialist referral recommended or something like this.
If you need moral support, come back to these boards. We all understand what you are going through and NO ONE can understand what it is like to have one of these darn things on your ovaries unless they actually have one sitting there. I KNOW this for a fact.
Take good care of yourself.
Estria |
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Thu Aug 21, 2008 5:38 pm |
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Tracey72
Amethyst Member (20+ Posts)
Joined: 01 Aug 2008
Posts: 20
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Estria thank you again for your very good advice
On Friday I phoned my consultants secretary and I explained the situation to her and what the letter said that was sent to my GP and how confused I was.
She told me that I was infact down for a CT scan/MRI scan and she was surprised I wasnt given another appointment when I was there last week,
I told her that I had asked for my bloods to be taken as I wasnt prepared to wait another 4 weeks to make another appointment and she said they would probably wait for the results of that but it wasnt clear as the registrar had not written the notes up from my appointment and she could read his writing very well
She told me to ring up on weds for my blood results or to be on the safe side to give it another week as they normally take 2 weeks although she said if pathology found anything clinic would ring through straight away so I neednt worry on that score
So that put my mind at ease a bit as now I know they are doing something whereas before I felt as though nothing was being done.
I have not been in much pain today apart from in my back but God I measured myself yesterday out of interest and I have put 3 inches on round my waist and 6 inches round my tummy and I now feel as though I am 8 months pregnant.
I darent buy any more clothes as I have already gone up a size in bottoms.
Not good |
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Sat Aug 23, 2008 6:46 pm |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hello Tracey,
Glad to hear that you are down for a scan but did they tell you when you would be able to get in to have it done ? If it is later rather than sooner, I would still seek that private ultrasound.
If your blood results come back normal you will still be faced with a mystery as to your bloating problem so you will have to have some sort of scan either way, be it at CT/MRI or another ultrasound. They need to see if there is fluid in your abdomen that might be causing the bloating. This kind of fluid can arise from all sorts of things, including the rupture of an ovarian cyst.
Try calling them on Wed anyway, just in case they have the results. Tell them that the assistant told you to call and if they don't have the results, get them to tell you when they will have them and call them again. Make them accountable and stay on it.
I am sure that they will eventually get around to doing their jobs but you would probably rather have them do it sooner than later. The anxiety you are feeling is not a great thing and you want to get this thing off your mind as soon as possible so that you can go back to living a painfree life.
Come back and let us know how everything goes and take care.
Estria |
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Sun Aug 24, 2008 5:40 am |
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CC123
Aquamarine Member (10+ Posts)
Joined: 02 Jul 2008
Posts: 18
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So I went for my appt last Tuesday and my obgyn walked in and said "So are we just here for a little check up before your ultrasound tomorrow?" I said "No, I had it moved up. It was last week because of all the pain I was in." He said he didn't have the report but would go and try to find it. His nurse came bach 5 minutes later and said that the good thing was the report was found...bad thing the doctor had to go deliver a baby. Seeing how I had been waiting for an appt for 3 weeks with him I broke down and started crying. She set me up an appt for Thursday morning at 8:15 am. I got up at 6am and got my kids up and ready for school and left at 7:30 for my appt only to get there and get in a room and them to tell me at 8:45 that he was at the hospital delivering babies and wouldn't be back till the afternoon. I came back that afternoon and finally got him and he told me that my ultrasound came back clean so he recommended that I see a pain specialist to try and pinpoint where the pain is coming from. He told me to keep taking the birth control pills and there wasn't anything more he could do for me. I asked a couple more questions and he said well at this point should we take out your uterus no that would be crazy...should l open you up and do a laprascopy?...we might not find anything. I was so upset when I left there I sobbed when I got to my car.
Needless to say I now have an appt with my old obgyn that delivered my first 2 babies. He is out of my insurance group but agreed to see my private pay. Hopefully he will have some answers for me. I am now looking at endometriosis. It sounds like I have some of the symptoms that other women have with it and adhesions. I guess the only way to diagnose it is through laprascopic surgery.
Estria- I hope you are feeling good this week.
Tracey-I am glad to here you are going to get some more tests done. Hopefully they will find the answers you need to get you better.
Take care. |
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Tue Aug 26, 2008 9:35 pm |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hello CC123,
My goodness I am so sorry for the way you are being treated. This is unbelievable and you should really not put up with this kind of behaviour from a health care provider. Is there any way that you can switch doctors ? If you are in so much pain that laparoscopic surgery is necessary to find the problem then so be it. This option should at least be discussed with you instead of pooh poohing your pain away.
I am glad that you managed to get an appointment privately with your other gynecologist. Perhaps he may have some insight. Unfortunately some things that cause pain cannot be seen on scans (like endometriosis) and have to be found through a lap. And what the heck does removing your uterus have to do with it ?! The pain could be caused by any number of things. Did you get a copy of that ultrasound ? If not, see about getting it. From what you are saying about this doctor, I certainly would not trust him to come to the right conclusions about my health.
Don't despair ! There are so many women that are going through this and a lot of them eventually find a health care provider that is sympathetic to their problem and is willing to do something about it. A doctor worth his salt should know that a patient who keeps coming back into his office is not doing so to get attention or to be over dramatic but is simply there because her problem was not resolved in the first place and her only recourse is to return to her doctor until something concrete is done. So many health professionals are willing to believe the former and not the latter reason and I don't know why.
I think that you need to follow another course. Go see that other gynecologist and see what he says and if you are not satisfied, see about changing gynecologists .. I don't know if perhaps a woman gynecologist might be more sympathetic (?) but I guess it all depends upon the doctor (some men are very good too). You should also keep copies of all of your ultrasound reports as these are valuable information that you should keep in your files. These can be given to future doctors in order to help diagnose the problem (even if they are normal this is important information).
Hang in there and try not to despair. You are not being treated in a humane manner, that is for sure. Don't feel that all is lost just because this one idiot prefers his pocketbook over his patients (why is he booking appointments when he is on call for obstetrics ?!). Don't take it personally, just be businesslike and find someone else. If a contractor kept putting you off and you needed repairs to your house what would you do ? Find another one, right ? This is no different except it is more important than a house repair so act accordingly. Fire his ass ! and tell anyone who will listen about how poorly he has treated you.
I will you all the best and sincerely hope that you can find a solution to this. Come back and let us know how your treatment is progressing.
Take care and hang in there !
Estria |
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Wed Aug 27, 2008 7:38 am |
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Tracey72
Amethyst Member (20+ Posts)
Joined: 01 Aug 2008
Posts: 20
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Oh hun
I dont know what to say other than back up what Estria has said.
It wasnt very professional of that man at all to have lost your notes etc, to be on call and the way he spoke to you.
I hope your appointment with your new gyno is better and you come away with a feeling that something is being done.
Take care and be strong.
I got my appointment through for a CT scan today and its not until the 23rd Sept a bit further away than I expected. Going to ring my insurance company and see if I can go private and have it done sooner. As I am sick of everything taking forever to be done I need to be back at work before my sick pay runs out I cant afford to be off work and not being paid. Plus when I am having good days I feel as though I shoudl be at work but then yesterday I felt great and attempted some housework when all of a sudden I felt hot and sick and had a burning feeling in y stomach. It passed after 5 mins but I knew then it was time to take it easy.
We will get through this ladies and come out the other side stronger  |
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Wed Aug 27, 2008 6:11 pm |
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Tracey72
Amethyst Member (20+ Posts)
Joined: 01 Aug 2008
Posts: 20
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Hi all
Hope we are all well I am certainly a lot better my Gp has put me on some new drugs and they are fantastic I can hardly feel any pain at all.
But this morning I got another appointment from the hospital and they want me to go in for a MRI scan the day after my CT scan.
Why would they want to do both?
I am not sure what to think apart from scared and anxious..
My scans are on the 23rd and 24th so still a bit to wait and worry
Tracey x |
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Sat Sep 06, 2008 4:05 am |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hello Tracey,
I don't think that the fact that they have you down for two scans is a cause for concern. You said in an earlier post that the secretary had told you you were down for a CT scan/MRI scan so either they took this to mean that you need both when in fact the doctor wanted either one or the other, OR the doctor had decided to send you for both just in case one was inconclusive. Sometimes this is better than sending you first for a CT and then an MRI after that because the CT did not show anything.
Try to relax and think how good it will feel to finally have those scans done. Hopefully they will be able to find the cause of your pain so that they can treat it. You have my best wishes that your tests will finally show something. Keep in mind that if you have endometriosis this is extremely difficult to see in any scan. Just the smallest bit could cause problems and it would only be visible if they did a laparoscopy (and even then sometimes they can miss it).
Glad to hear that what the doctor gave you is working though so thank goodness for small miracles. Hang in there and all the best.
Estria |
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Sat Sep 06, 2008 2:18 pm |
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CC123
Aquamarine Member (10+ Posts)
Joined: 02 Jul 2008
Posts: 18
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Hi girls,
Went to see my old obgyn last week who is not in my medical group any more. He accepted me as a private pay. He listened to my symptoms and did a pelvic exam. He told me that my exam was normal and that what he thinks happened was that I had a hemmoragic cyst (blood filled) and that those types of cysts can do a number on the ovary which can take several months to heal. He said that some ovaries that they have seen after that type of cyst can look black and blue and really beat up. I told him that my other obgyn recommended that I go see a pain specialist and he said that he may recommend that if it had been 6 months or more but for right now I am in normal time frame for my body to heal from one of those cysts. I hope he is right and that I should start to get better.
I then went to the pain specialist the next day and had about a 1/2 hour appt with him in which he asked me a series of questions and then did a rectal on me. His conclusion was that it was probably not nerve related and that in fact was a gynacological thing and that my private ob was right.
It is just so hard for me to believe that I would have so many weird uncomfortable sensations from a cyst. The last couple of days I have the feeling back of having a bladder infection (the squeezing in the bladder that radiates down to the front of the vagina). I hate that worse than I do the pressure/ball feeling in the rectum.
You know what I have noticed...I tend to get these pains/sensations worse when I am feeling anxious or upset about something. Have you girls noticed this??? |
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Sun Sep 07, 2008 11:31 pm |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hello CC123,
I know this bladder pain as well and I am relieved to hear someone else talking about this (you may recall that I am also familiar with this rectal pain that you describe, although I have not felt this for a while .. I do sometimes still get slight pain here but not as much as I used to). Sometimes it hurts when I urinate and I don't know if it is due to the cyst or if it something else.
I know that with my last ultrasound, my radiologist described the cyst as pushing my uterus to the right and to the front so I am wondering if this has anything to do with it. The bladder is in front of the uterus I think so we may feel it more than before. This is all just pure speculation for me but if I don't try to explain some of my pain I will go crazy.
I have to say that most of my pain occurs during ovulation time and that for the most part I am pain free. Any pain that I have during this time can be controlled with Advil but I don't like to overuse this drug and I usually stick to a heating pad during the less tolerable times.
If you start to have the urge to pee all of the time (ie. the burning sensation) then you may very well have a UTI but it you are talking about the sometimes bladder pain that comes with a UTI (I used to suffer from UTI's on a regular basis) but no burning sensation to urinate then it may very well be the cyst. I take probiotics everyday in order to help minimize UTI's and while I WAS on the pill I used to also drink cranberry juice every morning in order to avoid further infection (cranberry juice changes the acidity in your urine and helps to kill off all of those mean little bacteria that cause UTI's).
I sure hate having this thing hanging over my head all of the time (or should I say hanging over my uterus !). Take care and hang in there.
Estria |
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Tue Sep 09, 2008 4:30 am |
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CC123
Aquamarine Member (10+ Posts)
Joined: 02 Jul 2008
Posts: 18
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Hi Girls,
How are you all doing? Better I hope. I am still having the pressure and pelvic pain. I have about had all I can stand. I am feeling myself sinking into a depression and am trying to fight it for my families sake. It is so hard though when you are in chronic pain/discomfort especially in the region I am.
Estria- I think I have asked you this before but can't remember your response ( I looked for it) but in the beginning when this all started for you did you have that rectal/anal pressure every day for a couple of months or was it off and on. Mine is off and on but is everyday. I usually wake up feeling better but by midmorning the pressure comes back waxing and waning throughout the day.
I just don't know what else to do...I try and look on the bright side and think "OK I haven't been diagnosed with anything horrible...and I am able to get most things accomplished slowly(I don't move very fast anymore for fear body parts will fall out or are slowly falling)" but then I start to get anxious and depressed again and think that this is never going to go away and I just feel like crying all of the time. Thanks for letting me vent...deep breath...this soon shall pass. I hope.  |
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Sun Sep 21, 2008 3:47 pm |
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estria
Pearl Member (125+ Posts)
Joined: 19 Nov 2007
Posts: 139
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Hello CC123,
I am so sorry to hear that you are STILL having to put up with all of this.
When I first started to feel that rectal pressure, I used to have it pretty constantly but especially when I ovulated. For some strange reason that I cannot explain, I no longer get this sensation. I still feel quite awful around the time of ovulation and wonder if it will go away but after I ovulate it always does. Some of this pain is still that rectal pressure.
I seriously think that this is fluid in the abdomen that is irritating the rectal and bowel area. I also noticed in my last ultrasound which was done by someone other than my regular radiologist that he noted that the cyst was pushing the uterus to the right and to the front so I am wondering if this is also not the cause of my discomfort. When I am ovulating or on my period (as I am now) I feel discomfort if I sit too suddenly (ie. not carefully). It's as if everything is fragile in there or something.
I am wondering if you have tried to use a heating pad on a regular basis. I find that when I am going through this pain period a heating pad is the best thing. I don't like to take too much Advil so I figure the heating pad is harmless. It always seems to help.
Pain is a horrible thing to have to live with and you really need to see about getting a referral to someone who will find a solution. The pain has to be caused by SOMETHING .. even if they did not see a cyst on the ultrasound, there must be something there that is causing this. Have you tried to mark the pain episodes on a calendar in order to see if there is a pattern or relation to your cycle. Or perhaps some relation to a food item that is making the pain worse somehow ?
Have you tried to cut out meat and dairy products for a few weeks to see if they are perhaps exacerbating the pain ? I am sure that you have tried many things and this is why you need to not give up and see about getting a referral to someone else. it is certainly not the first time that I have heard of someone getting a solution to a medical problem only after going to see many different doctors. All you need is one who has seen your problem before and who knows exactly what it is by experience.
Don't let yourself get depressed .. there is someone out there who can help and all you have to do is to find them .. they are there. In the meantime, try a variety of different things to try to control the pain .. heating pads, Ibuprofen, acupuncture .. experiment and find something that will make it at least tolerable.
Hang in there and if you need to vent .. come back and talk to us .. this also helps as we all know.
Take care.
Estria |
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Mon Sep 22, 2008 10:04 am |
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CC123
Aquamarine Member (10+ Posts)
Joined: 02 Jul 2008
Posts: 18
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Thanks estria for the quick response. I had another appt today with my gp and he is taking blood tests for thyroid, liver and kidney function. He also prescribed me paxil because he said that he has seen patients that have similar symptoms(pelvic pain) that was caused by stress. I do worry a lot, especially about my kids. If anything it might help me not be so depressed about my current pelvic floor situation. Unfortunately, one of the things I worry about is medicine and the side effects it can cause. I was totally stressed about starting the birth control pills. Oh well, at this point I will do just about anything. I will check back soon.
Thank again. |
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Tue Sep 23, 2008 5:33 pm |
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